With Dementia…Time is My Enemy

It’s been awhile since we’ve shared a guest blog from Rick Phelps. Rick was diagnosed with Early Onset Alzheimer’s Disease in June of 2010 at the age of 57. Rick is passionate about bringing awareness to this disease and is the Founder of Memory People, an Alzheimer’s and dementia support and awareness group on Facebook. In the latest blog article, Rick tells us how time has become his enemy with his disease.

“Sometimes yesterday, can seem a million years away.” This is the beginning of “While I Still Can…” a song my dear friend Dan Mitchell penned for me.

He took some of my quotes and put them to music. The reason the first line of the song is about yesterday, is because when you have dementia you have no yesterdays.

I no longer have any concept of time. I can tell time, but there is no concept of it. Ten minutes can seem like an hour. If someone says “I will call you in a half hour” that half hour is long forgotten in just minutes.

Many patients suffer with the loss of time. When you are able to tell time you need a reference point. Take for example, if you know you have to be at an appointment on a certain day, at a certain time, the first thing that goes through you mind is a reference of that time.

If it’s Monday at 3:00pm. you might reference that too it’s your first day back at work, and you have to be there when the kids get of school, at 3:00pm.

This doesn’t work when you have dementia. I can’t keep track of the time of day it is, let alone the day of the week. I have no reference to go by.

timeFlies

Telling your loved one you will be taking them to the doctor tomorrow, Monday at 1:00pm means absolutely nothing. Chances are they don’t know what today is, let alone tomorrow and if you tell them they will simply forget.

Again because they have lost the concept of time. Not many people talk about losing the ability to tell time or know what day it is, but it is a huge problem for the dementia patient.

Everything you do, everything you have planned from the time you wake up till the time you go to bed at night, dictates because of your reference to time.

Right now I know it’s Wednesday, only because I just looked. I had to fill some paper work already this morning, and did it before Phyllis June was up.

That was a mistake. I put the date as September 31rst. There is no September 31rst. I looked at the calendar and everything, but still wrote in September 31.

She checked it luckily and said its Oct.1, not September 31. She didn’t go into there is no September 31, knowing that it wouldn’t register any ways.

Out of habit, you will tell your loved one about a certain date, or time. And that’s fine. It’s what you have been doing forever. Just try to remember, they have no reference of time, and will likely not remember it in just minutes.

So, if it’s important you have to be the one to make sure they are ready to go or do whatever it is at any given time.

The second verse of the song goes, “Time is my enemy, that’s why I’m living for right now.. Tomorrow just to far to think about, my heart only knows one task.”

Time indeed is my enemy. And it most likely is your loved ones as well…

We’d like to thank Rick for sharing his personal stories with us to bring awareness of this disease to others. To learn more about Rick and his story you can visit his website at http://whileistillcan.net

If you or someone you know has been touched by dementia or you’d like more information, please join other patients, caregivers, and advocates all walking this journey together at the Memory People Facebook page at

https://www.facebook.com/groups/180666768616259

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